Closing the Knowledge Gap

HETEROTAXY
AWARENESS

Raising awareness. Saving lives. Building community.

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1M+
Social Media Views
$5,334
Total Raised
120+
5K Participants
10+
Partnerships
The Problem

What is Heterotaxy Syndrome?

Heterotaxy Syndrome is a rare congenital condition where internal organs are abnormally arranged. It affects 1 in every 10,000 births worldwide — yet less than 1 in 10 Americans have ever heard of it.

Without widespread awareness, families face delayed diagnoses, limited access to resources, and a critical shortage of research funding. Our mission is to change that.

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📊 85% First-Year Mortality

Many cases of Heterotaxy carry up to an 85% one-year mortality rate, making early awareness and research funding critical.

🌍 1 in 10,000 Births

Despite affecting thousands of children globally each year, the condition receives far less attention than other congenital defects.

💙 38% Don't Reach Age 25

Without sufficient research and treatment advancements, the long-term outlook for many Heterotaxy patients remains severe.

What We've Done

Phase 1 Highlights

📱

Social Media Campaign

Launched an Instagram campaign combining running challenges with Heterotaxy education, targeting local high school students across Middle Tennessee.

1,000,000+
Total Views
🏃

Heterotaxy 5K

Hosted Centennial High School's first-ever Heterotaxy 5K fundraiser with 120+ participants, 30 volunteers, and prizes from Fleet Feet.

$1,829
Raised at Event
📄

Infographic Flyers

Created and distributed 260 evidence-based infographic pamphlets in collaboration with Heterotaxy Connection and Vanderbilt University professors.

260
Flyers Distributed
See All Our Work →
Our Impact

By the Numbers

80K
Instagram Interactions
$5,334
Total Funds Raised
1,037
Instagram Followers
9
Active Partnerships
25+
Community Interviews
130+
Online Donors
260
Flyers Distributed
30+
Volunteers
Our Partners

Trusted Collaborators

We're proud to work alongside organizations that share our mission.

🏥 Heterotaxy Connection
☕ Honest Coffee Roasters
👟 Fleet Feet Franklin
🛒 Costco Wholesale
🏫 Williamson County Schools

About HTSA Bros

Our story, our mission, and why Heterotaxy matters.

Our Story

From Middle Tennessee to a Movement

The Heterotaxy Awareness Project (HAP) began when students at Centennial High School in Franklin, TN discovered that children in their own community were losing their lives to a condition most people had never heard of. Heterotaxy Syndrome — a rare congenital defect affecting organ placement — carries up to an 85% first-year mortality rate, yet less than 1 in 10 Americans know what it is.

Armed with a social media strategy, a partnership with Heterotaxy Connection, and an unwavering commitment to their community, the HTSA Bros team launched a campaign that reached over 1,000,000 people, raised more than $5,300, and brought Heterotaxy awareness to schools, businesses, and families across Middle Tennessee.

🎯 Our Mission

To close the knowledge gap on Heterotaxy Syndrome by educating communities, raising funds for research, and supporting affected families through partnerships and events.

🔭 Our Vision

A world where every child with Heterotaxy receives timely diagnosis, adequate funding for treatment, and a community that understands and supports their journey.

💙 Why Heterotaxy

Because 38% of individuals with Heterotaxy don't make it to age 25 — and the primary obstacle is not medicine, it's awareness and funding.

🌍 Our Reach

From Franklin, TN to over 1 million social media viewers, our campaign has demonstrated that local action can create national impact.

Our Work

Everything we've done to spread awareness and raise funds.

Project Timeline

Phase 1 Activities

Mar 2025

Social Media Campaign Launch

Launched @htsa_bros on Instagram with a unique running challenge — 1 mile per 10 new followers — paired with evidence-based Heterotaxy education content.

1,000,000+ Views · 1,037 Followers · 80K Likes
May 2025

GoFundMe Fundraiser

Created a GoFundMe page linked to Heterotaxy Connection, distributing it across social media and to 10+ local businesses and 5 school organizations.

$705 Raised · 130+ Donors
Jul 2025

Interview Series

Conducted 25+ community interviews with students and followers to assess awareness levels and refine our content strategy. Views spiked from 10,345 to 34,567 biweekly following strategy changes.

25+ Interviewed · 3x View Increase
Sep 2025

WCS Club Collaborations

Partnered with DECA, HOSA, JAG, and NHS at Centennial High School to expand volunteer capacity and school-wide awareness.

4 Club Partnerships · 30+ Volunteers
Oct 2025

Infographic Flyer Distribution

Distributed 260 evidence-based infographic pamphlets across local high schools in collaboration with Heterotaxy Connection and Vanderbilt University Biology professors.

260 Flyers · 4 High Schools
Nov 2025

Business Partnerships

Secured 5 local business partnerships with Costco, Fleet Feet, Whole Foods, Sprouts, and Honest Coffee Roasters — generating $2,800 in in-kind and cash support.

5 Businesses · $2,800 In Support
Jan 2026

Heterotaxy 5K Fundraiser & Awareness Run

Hosted Centennial's first-ever Heterotaxy 5K with 120+ participants, 30 volunteers, prizes from Fleet Feet, and a pre-race educational presentation on Heterotaxy.

120+ Participants · $1,152 Raised · 30 Volunteers

Our Team

Meet the people behind the Heterotaxy Awareness Project.

Leadership

The Founders

Nathan Ragheb
Nathan Ragheb
Co-Founder & CEO
Leads social media strategy, content creation, and business development. Grew @htsa_bros to 1,037 followers and 1M+ views.
Iker Rodriguez-Rincon
Iker Rodriguez-Rincon
Co-Founder & CFO
Leads community outreach and medical professional partnerships. Connected with Heterotaxy Connection CEO Necia Sabin to direct donations.
Eli Lewis
Eli Lewis
Director of Outreach & COO
Pioneers and executes awareness campaigns with local businesses and schools. Coordinated school club partnerships across WCS.

Get Involved

Three ways to make a difference for Heterotaxy families.

🤝

Volunteer

Help us at events, distribute flyers, or assist with social media. No experience needed — just a passion for making a difference.

Sign Up to Volunteer
🏢

Partner With Us

Is your business or organization interested in supporting the HAP? We'd love to connect and explore how we can work together.

htsabros@gmail.com

Contact Us
Follow Our Journey

Find Us on Instagram

Follow @htsa_bros for weekly Heterotaxy education content, behind-the-scenes campaign updates, and our ongoing running challenge.

@htsa_bros on Instagram